• J Pain Symptom Manage · Dec 2024

    Comparative Study

    Addressing Statistical Power and Increasing Diversity in Hospice Research: Electronic Medical Record Participant Identification Compared to Nurse Referral Approaches to Recruitment.

    • Debra Parker Oliver, Mary Ersek, Patrick White, Lucas Jorgenson, Kyle Pitzer, Abigail Rolbiecki, Masako Mayahara, Karla Washington, and George Demiris.
    • Division of Palliative Medicine (D.P.O.), Department of Medicine, Washington University in St. Louis, Goldfarb School of Nursing, St. Louis, Missouri, United States. Electronic address: oliverd@wustl.edu.
    • J Pain Symptom Manage. 2024 Dec 1; 68 (6): 594602594-602.

    ContextRecruitment of targeted samples into hospice clinical trials is often challenging. While electronic medical records (EMR) are commonly used in hospital-based research, it is uncommon in hospice research. The community setting and the variability in hospices and their medical record creates unique challenges.ObjectivesThis paper compares recruitment in two hospice randomized controlled trials, each of which had a group recruited by using the EMR identification and a group recruited by nurse referral. We sought to answer three questions: 1) What is the impact of using the EMR to identify hospice participants for clinical research? 2) How do the referral count and consent rate (referrals that ultimately result in verbal informed consent to participate in research) differ between hospice agencies using an EMR participant identification approach compared to those using a nurse referral approach? and 3) What are the challenges associated with using the EMR to identify potential research participants?MethodRecruitment data from two hospice clinical trials was combined into a new database. Data from hospice nurse referral agencies was compared with data from those agencies who participated in EMR-identified referrals.ResultsThe EMR identification process was feasible and efficient, resulting in more referrals and more consented participants than the nurse referral method. Of particular interest is that 8% more black caregivers were recruited using the EMR identification process than the nurse referral.ConclusionsThe EMR-identified recruitment process is the recommended method in hospice research.Copyright © 2024 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

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