• Res Nurs Health · Feb 2008

    Parents' perspectives on having their children interviewed for research.

    • Emily K Hadley, Carrol A M Smith, Agatha M Gallo, Denise B Angst, and Kathleen A Knafl.
    • University of Illinois at Chicago, Chicago, IL, USA.
    • Res Nurs Health. 2008 Feb 1;31(1):4-11.

    AbstractWe describe parents' perspectives on research interviews with their children with single gene conditions. One hundred forty-two parents were interviewed between 2002 and 2003 in a larger study using a qualitative descriptive design. Two questions from the semi-structured interview guide were used to identify parents' perspectives about future interviews. Almost all of the parents said they would allow an interview with their children, but some parents specified stipulations. These stipulations included: focusing on age-appropriate information, limiting information with child, considering input from parents, and providing a child-oriented environment. Knowing this information, researchers can prepare to work more collaboratively with parents and include them more fully in the research process.(c) 2007 Wiley Periodicals, Inc.

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