Journal of pain and symptom management
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J Pain Symptom Manage · Dec 2022
A Cross-Cultural Adaptation and Content Validity of COMFORTneo Scale into Brazilian Portuguese: Adaptation of COMFORTneo Scale into Portuguese.
The instrument used to assess neonatal pain must be adequate regarding the type of pain, population, country, and language to provide the best evidence-based clinical strategies; however, few neonatal pain instruments have been translated and validated for the Brazilian population. ⋯ The COMFORTneo scale was properly and cross-culturally adapted into Brazilian Portuguese, reaching semantic, idiomatic, experimental, and conceptual equivalence with the original instrument, and a good CVI.
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J Pain Symptom Manage · Dec 2022
Symptom Management Experience of End-of-Life Family Caregivers: a Population-Based Study.
In the United States, 30% of all deaths occur at home. Effective symptom management is integral to quality end-of-life (EOL) care. Family caregivers play a major role in EOL symptom management. Recent federal policies emphasize the need to improve training and support for family caregivers. ⋯ These findings underscore the need to improve training and support for family caregivers in EOL symptom management.
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J Pain Symptom Manage · Dec 2022
Specialty-Aligned Palliative Care: Responding to the Needs of a Tertiary Care Health System.
Expanding specialty palliative care within complex health systems involves consideration of patients' unmet needs, clinicians' perceptions of palliative care, and the availability of palliative care resources. Prior to this quality improvement (QI) project, palliative care services in our health system primarily served oncology patients. ⋯ Careful needs assessment and stakeholder engagement can result in goal-directed and data-driven expansion of palliative care services within tertiary health care systems.
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J Pain Symptom Manage · Dec 2022
Prognostic Understanding and Goals of Palliative Radiotherapy: A Qualitative Study.
There is a paucity of data describing patients' expectations of goals of palliative radiotherapy (RT) and overall prognosis. ⋯ Unclear perceptions of goals of treatment and prognosis may motivate some patients to pursue unnecessarily aggressive cancer treatments. Patients desire prognostic information from their doctors, including radiation oncologists, who are important contributors to goals of care discussions and may improve patient understanding and well-being by using restorative rather than combat-oriented language.