Journal of pain and symptom management
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J Pain Symptom Manage · Dec 2022
ReviewThe Application of Minimal Clinically Important Differences in Palliative Research: Interpretation of Results of a Systematic Review.
Interpreting clinical meaningfulness of patient reported outcomes (PROs) in palliative care research is key in evidence-based practice. Minimal clinically important differences (MCIDs) can help interpret whether changes in PROs are meaningful to patients. ⋯ Incorporating MCIDs affected the interpretation of almost all PROs in the systematic review. MCIDs are important measures of clinical meaningfulness for the interpretation of palliative care research involving PROs. Researchers should consider using instruments with well-established MCIDs and incorporate MCIDs, when available, in study design and interpretation.
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J Pain Symptom Manage · Dec 2022
Symptom Management Experience of End-of-Life Family Caregivers: a Population-Based Study.
In the United States, 30% of all deaths occur at home. Effective symptom management is integral to quality end-of-life (EOL) care. Family caregivers play a major role in EOL symptom management. Recent federal policies emphasize the need to improve training and support for family caregivers. ⋯ These findings underscore the need to improve training and support for family caregivers in EOL symptom management.
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J Pain Symptom Manage · Dec 2022
Culturally Adapted Consensus Definition and Action Guideline: Japan's Advance Care Planning.
A conceptual framework for advance care planning is lacking in societies like Japan's valuing family-centered decision-making. ⋯ Adaptation of advance care planning to Japanese culture by consciously enhancing and supporting individuals' autonomous decision-making may facilitate its spread and establishment in Japan and other societies with family-centered decision-making cultures.
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J Pain Symptom Manage · Dec 2022
A Cross-Cultural Adaptation and Content Validity of COMFORTneo Scale into Brazilian Portuguese: Adaptation of COMFORTneo Scale into Portuguese.
The instrument used to assess neonatal pain must be adequate regarding the type of pain, population, country, and language to provide the best evidence-based clinical strategies; however, few neonatal pain instruments have been translated and validated for the Brazilian population. ⋯ The COMFORTneo scale was properly and cross-culturally adapted into Brazilian Portuguese, reaching semantic, idiomatic, experimental, and conceptual equivalence with the original instrument, and a good CVI.