Journal of pain and symptom management
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J Pain Symptom Manage · Jun 2022
ReviewApplication of Critical Race Theory in Palliative Care Research: A Scoping Review.
Structural racism negatively impacts individuals and populations. In the medical literature, including that of palliative care, structural racism's influence on interracial differences in outcomes remains poorly examined. Examining the contribution of structural racism to outcomes is paramount to promoting equity. ⋯ Palliative care research frequently highlights racial differences in outcomes. Articles that examine racial differences often assume that differences need to be fixed but posit reasons for differences without the narratives of those most affected by them.
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J Pain Symptom Manage · Jun 2022
Pragmatic Clinical TrialWhat's in the sauce? The Specific Benefits of Palliative Care for Parkinson's Disease.
Increasing evidence demonstrates the benefits of palliative care among individuals with Parkinson's disease and related disorders (PDRD), but the critical components that contribute to therapeutic effects are not well understood. ⋯ Specific benefits of an integrated palliative approach in PDRD include improvement in patient holistic self-impressions, care partner self-efficacy, and non-motor symptoms.
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J Pain Symptom Manage · Jun 2022
The Lived Experience of Physical Separation for Hospice Patients and Families amid COVID-19.
Many hospice patients were physically separated from family members and healthcare professionals during the early COVID-19 pandemic. ⋯ Inclusive, innovative connection strategies are needed to ensure that high-quality end-of-life care is provided to hospice patients and their family caregivers when physical presence must be limited.
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J Pain Symptom Manage · Jun 2022
HAprog: a new prognostic application to assist oncologists in routine care.
More patients are seeing palliative care (PC) earlier in the disease trajectory. The Barretos Prognostic Nomogram (BPN) was designed to fill the gap of survival prognostication for patients with advanced cancer and months of life expectancy. However, its routine use is limited by the common need for a ruler and calculator. Additionally, the BPN requires blood tests. ⋯ The new models that integrate HAprog are refined prognostic tools with adequate calibration and discrimination properties. It has potential practical impact for the oncologist dealing with outpatients with advanced cancer during the decision-making process.
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J Pain Symptom Manage · Jun 2022
Sufficient death preparedness correlates to better mental health, quality of life, and EOL care.
Patients can prepare for end of life and their forthcoming death to enhance the quality of dying. ⋯ Conjoint cognitive and emotional preparedness for death is associated with cancer patients' lower psychological distress, better QOL, reduced anti-cancer therapy, and increased hospice-care utilization. Facilitating accurate prognostic awareness and emotional preparedness for death is justified when consistent with patient circumstances and preferences.