Journal of pain and symptom management
-
J Pain Symptom Manage · Jul 2022
Pediatric Hospice and Palliative Care Services and Needs Across the Northwest United States.
Given workforce and funding constraints, pediatric hospice and palliative care clinicians often find challenges providing services for seriously ill children and families, particularly in low resource and rural/remote areas. ⋯ Pediatric hospice and palliative care clinicians face numerous barriers and may benefit from a coalition that provides networking and tailored education.
-
J Pain Symptom Manage · Jul 2022
ReviewA Decade of Studying Drivers of Disparities in End-of-Life care for Black Americans: Using the NIMHD Framework for Health Disparities Research to Map the Path Ahead.
The purpose of this paper is to provide a review of the existing literature on racial disparities in quality of palliative and end-of-life care and to demonstrate gaps in the exploration of underlying mechanisms that produce these disparities. ⋯ The sociocultural environment, physical/built environment, behavioral and biological domains remain understudied areas of potential causal mechanisms for racial disparities in end-of-life care. In the Healthcare System domain, social influences including healthcare policy and law are understudied. In the sociocultural domain, the majority of the studies still focused on the individual level of influence, missing key areas of research in interpersonal discrimination and local and societal structural discrimination. Studies that focus on individual factors should be better screened to ensure that they are of high quality and avoid stigmatizing Black communities.
-
J Pain Symptom Manage · Jul 2022
Hospice Care Experiences Among Decedents with Huntington's Disease.
Little is known about the hospice care experiences of those with Huntington's Disease (HD). ⋯ Our findings highlight the benefits of hospice care for those with HD and their families and may be useful for patients with HD when making decisions regarding options for end-of-life care.
-
J Pain Symptom Manage · Jul 2022
Mindful self-care, self-compassion, and resilience among palliative care providers during the COVID-19 pandemic.
Given the adverse impact of COVID-19 on the wellbeing of palliative care providers, there is a growing need to better understand protective variables, such as self-care, mindfulness and self-compassion, as they relate to resilience. ⋯ Results from this study extend the currently limited knowledge of self-care, mindfulness and self-compassion, as protective variables related to resilience in palliative care providers during the COVID-19 pandemic. Further longitudinal studies into causal effects on health and wellbeing over time are needed.