Journal of pain and symptom management
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J Pain Symptom Manage · Jun 2022
Sufficient death preparedness correlates to better mental health, quality of life, and EOL care.
Patients can prepare for end of life and their forthcoming death to enhance the quality of dying. ⋯ Conjoint cognitive and emotional preparedness for death is associated with cancer patients' lower psychological distress, better QOL, reduced anti-cancer therapy, and increased hospice-care utilization. Facilitating accurate prognostic awareness and emotional preparedness for death is justified when consistent with patient circumstances and preferences.
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J Pain Symptom Manage · Jun 2022
Bereaved Parent Perspectives and Recommendations on Best Practices for Legacy Interventions.
Many pediatric hospitals offer legacy interventions for families to promote coping and support grief prior to and following the death of a child. Despite this practice, parent perceptions of the value of legacy activities are not well described, and best practices for offering and creating legacy interventions remain poorly understood. ⋯ Bereaved parents emphasized the meaningfulness of legacy-building activities and the need for an individualized approach when offering these interventions. Future research should explore the perspectives and recommendations of patients and siblings on legacy activities.
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J Pain Symptom Manage · Jun 2022
Delphi Method to Develop a Palliative Care Tool for Children and Families in Sub-Saharan Africa.
In sub-Saharan Africa, there is no standardized approach to pediatric palliative care assessment. Because of this, there is a critical demand for evidence-based assessment tools that identify the specialized needs of children and their families requiring palliative care in developing countries. ⋯ The Delphi method was an effective tool to develop a consensus on a PPC assessment tool to use with children and their families in sub-Saharan Africa. This standardized approach will enable the collection of data to drive outcomes and research.