Journal of pain and symptom management
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J Pain Symptom Manage · May 2022
Concurrent validity and prognostic utility of the Needs Assessment Tool: Progressive Disease Heart Failure.
People with advanced heart failure have supportive and palliative needs requiring systematic assessment. ⋯ The NAT:PD-HF is a valid tool for clinician assessment of physical, psychosocial, and information patient and/or carer needs.
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J Pain Symptom Manage · May 2022
End Stage Kidney Disease Patient Experiences of Renal Supportive Care in an Australian Teaching Hospital - A qualitative study.
Renal Supportive Care Services (RSCS) were introduced in Australia to provide patient-centred care with a focus on better symptom management and improved quality of life in end stage kidney disease (ESKD) patients managed with or without dialysis. While RSCS have demonstrated clinical benefits with reduced length of hospital stay and symptom burden, there is a gap in understanding the experience of patients referred to RSCS. ⋯ The study found that RSCS support patient-centred and family-orientated initiatives in decision making and control over healthcare management. This is empowering for patients. Additional patient values, needs and wants from the RSCS were also identified and these could be addressed to improve the patient experience. Our findings support the ongoing use of RSCS to improve the experience of ESKD patients.
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J Pain Symptom Manage · Apr 2022
Cross Country Comparison of Expert Assessments of the Quality of Death and Dying 2021.
Few efforts have attempted to quantify how well countries deliver end-of-life (EOL) care. ⋯ This study provides an example of how a preference-based scoring algorithm and input from key stakeholders can be used to assess EOL health system performance. Results highlight the large disparities in assessments of the quality of EOL care across countries, and especially between the highest income countries and others.