Journal of pain and symptom management
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J Pain Symptom Manage · Jan 2022
Existential Quality of Life and Associated Factors in Cancer Patients Receiving Palliative Care.
Enhancing quality of life (QoL) is a goal of palliative care. Existential QoL is an important aspect of this. ⋯ While most patients reported moderate to high levels of existential QoL, a subgroup reported low existential QoL. Terminal illness awareness and symptom burden may be associated with lower existential QoL.
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J Pain Symptom Manage · Jan 2022
Healthcare Professionals' Experiences of the Barriers and Facilitators to Pediatric Pain Management in the Community at End-of-Life: A Qualitative Interview Study.
Inadequate pain management in community pediatric palliative care is common. Evidence to inform improved pain management in this population is limited. ⋯ Partnership working and trust between healthcare professionals and parents, and within healthcare teams, is needed for effective at-home pediatric palliative pain management. Community healthcare professionals require more education from experienced multidisciplinary teams to effectively manage pediatric pain at end-of-life and prevent emergency hospice or hospital admissions, particularly during the COVID-19 pandemic.
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J Pain Symptom Manage · Jan 2022
Physicians' opinion and practice with the continuous use of sedatives in the last days of life.
There are few international studies about the continuous use of sedatives (CUS) in the last days of life. ⋯ Many respondents in our study considered CUS acceptable for the relief of physical and psycho-existential suffering in the last days of life. The acceptability was lower regarding CUS for psycho-existential suffering and regarding CUS for patients with a longer life expectancy.
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J Pain Symptom Manage · Jan 2022
Parent and Adolescent Perspectives on the Impact of COVID on the Care of Seriously Ill Children.
Few studies have explored the impact of the Coronavirus Pandemic (COVID-19) on the care of seriously ill children which may be especially affected due to the child's vulnerability, complexity of care, and high reliance on hospital-based care. ⋯ Families caring for seriously ill children during COVID-19 face increased challenges. Health systems should consider long-term telehealth/in-person hybrid care models that have potential to improve access to and satisfaction with care.