Journal of pain and symptom management
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J Pain Symptom Manage · Mar 2021
ReviewUser-centered design of the consideRATE questions, a measure of people's experiences when they are seriously ill.
No brief patient-reported experience measure focuses on the most significant concerns of seriously ill individuals. ⋯ Our brief patient-reported serious illness experience measure is based on what matters most to patients, families, and clinicians. It was acceptable to patients and families in a regional sample. It has promise for use in clinical settings.
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J Pain Symptom Manage · Mar 2021
Observational StudyThe Impact of COVID-19 Surge on Clinical Palliative Care: A Descriptive Study from a New York Hospital System.
In spring 2020, New York experienced a surge of patients hospitalized with severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2 or COVID-19) disease, as part of a global pandemic. There are limited data on populations of COVID-19-infected patients seen by palliative care services. ⋯ During the initial surge of the COVID-19 pandemic in New York, palliative care services experienced a large surge of patients who tended to be healthier at baseline and more acutely ill at the time of admission than pre-COVID-19 palliative patients.
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J Pain Symptom Manage · Mar 2021
CHARTING THE TERRITORY: END-OF-LIFE TRAJECTORIES FOR CHILDREN WITH COMPLEX NEUROLOGICAL, METABOLIC AND CHROMOSOMAL CONDITIONS.
For parents, family, or clinicians of children with rare life-threatening conditions, there is little information regarding likely symptoms, illness trajectory, and end-of-life care. ⋯ Although much emphasis on pediatric palliative care has been on supportive treatment and symptom management, when faced with a lack of sound understanding of a rare illness, the mode of care can often be reactive and based on critical needs. By developing greater knowledge of symptoms and illness trajectory, both management and care can be more responsive and anticipatory, thereby helping ease illness burden and suffering.
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J Pain Symptom Manage · Mar 2021
Multicenter StudyHow we can improve the quality of care for patients requesting medical assistance in dying: a qualitative study of health care providers.
Since Canada decriminalized medical assistance in dying (MAID) in 2015, clinicians and organizations have developed policies and protocols to implement assisted dying in clinical practice. Five years on, there is little consensus as to what constitutes high-quality care in MAID. ⋯ Canadian health care providers described unique challenges in caring for patients who request MAID, along with practices to improve the quality of care.
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J Pain Symptom Manage · Mar 2021
Randomized Controlled TrialStable symptom clusters and evolving symptom networks in relation to chemotherapy cycles.
The existence of stable symptom clusters with variations or changes in cluster membership and the merging of symptom clusters over time urge us to investigate how symptom relationships change over time. ⋯ Stable symptom clusters and evolving networks were identified. The most central symptom was fatigue; however, the paucity of studies that investigated symptom networks and central symptoms calls for further investigations on these phenomena. Identification of central symptoms and underlying mechanisms will guide efficient symptom management. Future studies will need to focus on developing comprehensive interventions for managing symptom clusters or targeting central symptoms.