Seminars in dialysis
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Patients living with end-stage renal disease (ESRD) are faced with numerous decisions across the trajectory of their illness. Shared decision making (SDM) offers a patient-centered approach to engage patients in decision making in meaningful ways. Using an SDM approach, patients and providers collaborate to make healthcare decisions by taking into account the best available empirical evidence, in conjunction with the patient's values, preferences, and individual circumstances. ⋯ Because nephrology team members spend a lot of time interacting with patients during treatments and follow-up care, they are well positioned to engage in SDM. Healthcare systems need innovation in communication to ensure the ethical application of important technological improvements in renal treatments, and to ensure that patient decision-support processes are available. SDM is a promising innovation to support the recalibration of care for patients living with end-stage renal disease.
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Seminars in dialysis · Mar 2013
Using an electronic self-management tool to support patients with chronic kidney disease (CKD): a CKD clinic self-care model.
New healthcare delivery models are needed to enhance the patient experience and improve quality of care for individuals with chronic conditions such as kidney disease. One potential avenue is to implement self-management strategies. There is growing evidence that self-management interventions help optimize various aspects of chronic disease management. ⋯ Therefore, it is currently unknown if IT strategies will promote self-management behaviors and lead to improvements in overall patient care. We designed and developed an IT solution called My KidneyCare Centre to support self-management strategies for patients with CKD. In this review, we discuss the rationale and vision of incorporating an electronic self-management tool to support the care of patients with CKD.