Articles: palliative-care.
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J Pain Symptom Manage · Jan 2024
The "Surprise Question" for Prognostication in People with Parkinson's Disease & Related Disorders.
Parkinson's disease and related disorders (PDRD) are fatal neurodegenerative disorders characterized by a fluctuating course that can complicate prognostication. The "surprise question" (SQ: "Would you be surprised if your patient died in the next year?") has been used to identify patients with limited prognosis but has not been assessed in PDRD. ⋯ The SQ is sensitive to 12-month mortality in PDRD, with a high negative predictive value. The SQ may be useful for identifying patients less likely to die within a year and may be useful for identifying patients with palliative care needs outside of end-of-life care. This latter use may assist in mobilizing early and timely referral to specialist palliative care.
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J Pain Symptom Manage · Jan 2024
Mental Health Integration and Delivery in the Hospice and Palliative Medicine Setting: A National Survey of Clinicians.
Mental health comorbidities among individuals with serious illness are prevalent and negatively impact outcomes. Mental healthcare is a core domain of palliative care, but little is known about the experiences of palliative care clinicians delivering such care. ⋯ Palliative care clinicians play a crucial role in addressing mental health comorbidities, but gaps exist in care. Integrated mental health care models, streamlined referral systems, and increased training opportunities can improve mental healthcare for patients with serious illness.
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J Pain Symptom Manage · Jan 2024
Perspectives on Transfusions for Hospice Patients with Blood Cancers: A Survey of Hospice Providers.
Patients with blood cancers have low rates of hospice use. While lack of transfusion access in hospice is posited to substantially contribute to these low rates, little is known about the perspectives of hospice providers regarding transfusion access in hospice. ⋯ In this national sample of hospices, access to palliative transfusions was severely limited and was considered a significant barrier to hospice use for blood cancer patients. Moreover, hospices felt increased reimbursement for transfusions would be an important intervention. These data suggest that hospice providers are supportive of increasing transfusion access and highlight the critical need for innovative hospice payment models to improve end-of-life care for patients with blood cancers.
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Revista médica de Chile · Jan 2024
Review[Early integration of palliative care; implications for people with chronic diseases].
Globally, there is a growing number of population with noncommunicable and aging diseases that are eligible for palliative care. ⋯ Palliative care is a strategy of care for all people with complex chronic pathologies, which should be integrated early, in an active, multidimensional and safe way, under the wing of a trained and coordinated health team at different levels of care.
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J Pain Symptom Manage · Jan 2024
Psychometric properties of the Chinese version of the Functional Assessment of Chronic Illness Therapy - Palliative Care (FACIT-Pal) in patients with advanced cancer.
The Functional Assessment of Chronic Illness Therapy-Palliative Care (FACIT-Pal) has been widely used in assessing the quality of life (QOL) of patients with life-limiting illness. However, the Chinese version of the FACIT-Pal has not been psychometrically validated yet. ⋯ The Chinese version of the FACIT-Pal demonstrates desirable psychometric properties for evaluating QOL in Chinese patients with advanced cancer.