Articles: palliative-care.
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J Pain Symptom Manage · Jun 2022
The Science of Context: Transforming Serious Illness Care Though In Situ Observation.
There is an expression, often attributed to Einstein, “If I had 60 minutes to save the world, I would spend the first 55 trying to figure out what was wrong with it.” Dr. J. Randall (Randy) Curtis’ approach to improving serious illness care has been so effective for exactly this reason. ⋯ Herein, we highlight Randy’s early work using direct observation and describe the trajectory and impact of his ground-up approach to research. In parallel, we describe the influence of his approach on our own work studying serious illness care in surgery and critical care. Although neither of us has had direct mentorship from Randy, we emulate Randy’s pioneering mentorship model in our work together, demonstrating his far-reaching influence.
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J Pain Symptom Manage · Jun 2022
Pragmatic Clinical TrialWhat's in the sauce? The Specific Benefits of Palliative Care for Parkinson's Disease.
Increasing evidence demonstrates the benefits of palliative care among individuals with Parkinson's disease and related disorders (PDRD), but the critical components that contribute to therapeutic effects are not well understood. ⋯ Specific benefits of an integrated palliative approach in PDRD include improvement in patient holistic self-impressions, care partner self-efficacy, and non-motor symptoms.
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Pediatr Crit Care Me · Jun 2022
Racial and Ethnic Differences in Inpatient Palliative Care for Pediatric Stem Cell Transplant Patients.
Racial/ethnic disparities in utilizing inpatient palliative care services are well documented in the adult literature. However, the impact of racial/ethnic disparities in the context of pediatric palliative care is less well understood even in high-acuity patient populations such as stem cell transplant patients. We investigated racial/ethnic differences in the utilization of inpatient palliative care consultations (IPCCs) for pediatric stem cell transplant patients. ⋯ Racial and ethnic differences exist in the likelihood of receiving palliative care consultations among hospitalized pediatric stem cell transplant recipients. Evaluating the impact of systemic racism and social determinants on palliative care medicine as well as standardizing early integration of IPCC may potentially mitigate disparities in this population.