• Der Schmerz · Oct 2020

    [Pain management in rare diseases].

    • D Emmert, L Heuchemer, J Sellin, J Reimann, H Cuhls, C Kornblum, H Seidel, R Conrad, and M Mücke.
    • Zentrum für seltene Erkrankungen (ZSEB), Universitätsklinikum Bonn, Venusberg Campus 1, 53127, Bonn, Deutschland.
    • Schmerz. 2020 Oct 1; 34 (5): 447-459.

    AbstractIn this article we address the relevance of rare diseases and their peculiarities with respect to pain therapy. Towards this end, four rare diseases (hemophilia, Morbus Fabry, dermatomyositis, and facioscapulohumeral dystrophy (FSHD)) will be presented and fundamental aspects of their pain therapies described. The diseases were chosen to showcase a pain therapy based on the WHO-step-by-step plan (hemophilia), a complex but established pain therapy (M. Fabry), and two less well established, individually adapted pain therapies (dermatomyositis, FSHD).

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